The Cystic Fibrosis Trust
Prompt Payer is proud to support the Cystic Fibrosis Trust (Registered Charity No. 1079049).
It is because of the Cystic Fibrosis Trust that the Prompt Payer Register exists! Our charity director, Josh Llewellyn-Jones, has Cystic Fibrosis. His father, Adrian Llewellyn-Jones was a trustee of the CF Trust for many years and realised that the only way to raise the many millions needed for research into this incurable and fatal disease was through the medium of business.
Prompt Payer was formed by Adrian Llewellyn-Jones to bring together ethical businesses who would be willing to support such a charity.
We have participated in many fund raising events; including climbing Kilimanjaro when Josh was seventeen - and his father was a lot older! - that brought in £120,000. A rugby match in Twickenham against the Houses of Commons and Lords, where Josh and Mark, our MD, aquitted themselves proudly, flattening Rob Andrew in the process, raised another chunk. Josh is a bit clever on the piano and sings his own songs - one of which - Kilimanjaro - he wrote at the top of that mountain! Following his appearance on 'This Morning' television he was the headline act at a Dorchester Hotel dinner where he helped to raise £144,000. A generous businessman was in the audience that night and promptly booked him to appear at his daughter's 21st which raised a staggering £110,000. So we're getting there! In between the 'big' events 1% of Prompt Payer's gross income will be donated to CF and hopefully - as one of the lines from 'Kilimanjaro' goes - 'We'll get there in the end.'
Cystic Fibrosis - The Bare Facts!
- Cystic Fibrosis (CF) is the UK's most common life-threatening inherited disease.
- Cystic Fibrosis affects over 8,000 people in the UK.
- Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis - around 1 in 25 of the population.
- If two carriers have a child, the baby has a 1 in 4 chance of having Cystic Fibrosis.
- Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.
- Each week, five babies are born with Cystic Fibrosis.
- Each week, three young lives are lost to Cystic Fibrosis.
- Average life expectancy is around 31 years, although improvements in treatments mean a baby born today could expect to live for longer.
- There is currently no cure for Cystic Fibrosis.
The work of the CF Trust
The Cystic Fibrosis Trust funds research to find an effective treatment for CF through gene therapy and we believe that this is going to be the nearest thing to a cure in the foreseeable future.
Other research is aimed at a pharmacalogical (or drug based) approach to treating Cystic Fibrosis and we invest in projects aimed at alleviating the symptoms of Cystic Fibrosis.
Through research, better understanding and treatment of Cystic Fibrosis, life expectancy is increasing. When the CF Trust was founded in 1964, life expectancy was just five years. It now stands at 31 - not good enough, but getting better.
The CF Trust's Support Service provides practical and emotional support, information and help with the benefits system. The Trust may be able to help by providing a grant or accessing grants from other sources.
To learn more please visit www.cftrust.org.uk
As a Prompt Payer remember you are indirectly supporting the Cystic Fibrosis Trust. But they are always grateful to those who wish to donate privately or indeed host fundraising events in aid of the Cystic Fibrosis Trust. It can be a great team building activity for staff and a great day out of the office.
Please visit www.cftrust.org.uk/help/howtodonate/ for more information.